@ DavidL,

Yes, I have symptoms that come and go. Some days (In the beginning) even fooled me into thinking that this horrible feeling is going to leave my body. I know now that it is only temporary and the all too familiar comes back. Although now, it never seems to be completely missing from my day to day. I also have the hope of nerve regeneration, supposedly it can be a similar feeling, but who really knows.
Good luck and you might try keeping a daily log as well and maybe you can find the triggers.