Quote:
Originally Posted by ginnie
Welcome to Neuro Talk. Gosh that list of symptoms isn't so good. So sorry you are having all those troubles. Even before I read the word Lyme, in your post, that is what came to my mind. I would highly suggest you seek out Mayo clinic. Of all the places in this country they seem to get to the bottom of someones problems. I went there at your age, to the one in Mn. Days of testing later, they did find out I have immune problems. I think that is the best diagnostic place in the country when all else is turning up a blank. I had gone to just as many doctors before I went there. I do wish you all the best. Have heart. I would not stop until I found what was wrong with me. I hope you are able to get the answers you need to. I will keep you in my thoughts and prayers. I hope alot of other people respond to you. ginnie  |
Hi, thanks for the kind words, its been very tough going from a healthy active 29 y/o just starting my career, to being debilitated pretty much over night...
Regarding the lyme, I have seen some LLMD's (they all think I have it) and my PCP (who is an ID doc) he is on the fence but still treating me with their LLMD protocol... I am skeptical wether I have it because I dont have a lot of the telltale signs. Though I started the tetracycline about 8 days ago and all my current symptoms (mainly the GI issues, fatigue, POTS, and sensations in my legs) seem to have gotten exceedinly worse, so much so that I didnt take my pills today, but it hasnt made a difference.