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Member
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Join Date: Sep 2006
Location: Australia
Posts: 660
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Member
Join Date: Sep 2006
Location: Australia
Posts: 660
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I did Beta for eight years..... the side effect were almost always there. That is why I went on Tysabri. Not saying that you should do that, but I do feel for you - it is like getting hit by a truck/having the hangover from hell.
When it was every second day, my quality of life was NOT GOOD. Now I know I am JC positive, I am thinking about trying Avonex.
Maybe I can cope with it once a week - but I am sorry that you are feeling so bad. Lots of people feel like that for the first few months and then the 'flu symptoms stop. I hope that you are one of them.
Regards
Lyn
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Lyn .
Multiple Sclerosis Dx 2001 Craniotomy to clip brain aneurysm 2004. ITP 1993.
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