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Old 08-16-2012, 11:16 AM
scrubbs scrubbs is offline
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Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
scrubbs scrubbs is offline
Member
 
Join Date: Nov 2009
Location: las vegas, nv
Posts: 181
10 yr Member
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With treatment most people can lead a "relatively normal life". You read this statement on numerous websites about MG and I, for one, do not believe it unless you go into remission.

My opinion and experience. Prior to acquiring this disease, your muscles are strong.
Initially, you will have fluctuating weakness in your voluntary muscles and you can have times when you may be able to do normal things, not often, like you have no illness at all. At these times, you will still fatigue faster and require rest sooner because your strength just expires. Before you became ill, you could do a lot more and not feel as bad.

I think we can stay flexible by stretching but, because we do not have the ability to build muscle strength through exercise, the muscles just keep getting weaker.

With treatment or for some other reason you may become stabilized. I am considered "stabilized".

Now, at rest, I feel almost normal but, because I am still not able to build up my muscles, I notice any activities including walking causes my muscles to fatigue at a much faster rate which requires rest much sooner and I believe that even though my disease may not be getting worse, my muscles are still getting weaker and they will continue to get weaker.

So as time goes by, my not so "relatively normal life", my life will become much more less "relatively normal".

Even sitting on the floor playing with my dog causes exhaustion.

Scrubs
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"Thanks for this!" says:
StephC (08-17-2012)