Quote:
Originally Posted by Abbie
Hello draggenangel and welcome to NeuroTalk!
I have had RSD for 8+ years but only developed fibromyalgia in the past 2 yrs. My RSD continues to spread in some fashion very frequently.
The latest thing I have noticed is the back part of my tongue is on fire but cold or hot kill!!! Make the pain increase 10 fold!!!
I have officially been diagnosed with RSD from head to toe.
Like you, my pain management doctor for the past 3 years has closed his practice.....the whole pain clinic closed and the doctors are no longer listed on the Hospital's site as practicing medicine there. (I guess they all went poof!!! Gone!!!)
I called my primary care doc and am awaiting referral to a new doctor.
I sincerely wish you the best!! As you know this RSD MONSTER is different for all of us!! No two of us have the same symptoms nor react the same to the same medicines or treatments.
BUT PLEASE keep talking!! With help from everyone here you just might come up with a treatment that works for you.
Gentle hugs, 
Abbie |
I dont know if this is where I reply!!Lol The summer used to not bother me but this summer we had very hot start and I had to stay in bed in bikini for 3 days cause my back felt like I was on fire if any clothing touched it and moving around made it worse.And the sun oh man goes right through my eyes!So depressing cause rather have summer.Just dont understand because when I put heating pad on neck it seems to feel better.And when its cold or raining the shooting pains in my neck start to go crazy!Again how do I know which is which the rsd or the fibro causing it?So confused and lost...