Quote:
Originally Posted by teresakoch
You hit the nail on the head about "looking" just fine - it's hard for others to understand how sick we are, and there is absolutely no way to describe it in a way that those who don't have it can fully appreciate.
It's good that you have supportive parents - speaking as a mom, I know that they want to make sure that you are taken care of. You might be able to qualify for some government disability services, which might make it easier for you to get around. It's a tough call - being at home means that there will be someone around to keep an eye on you and make sure that you don't hit a crisis.
I think it must be harder to get this diagnosis when you are younger - you want to be able to get out and do everything that everyone else your age is doing, but your body betrays you. It sounds like you have a good attitude, and that is so important -  |
I wanted to add to what you said about looking just fine. When I was sitting at my desk, I'd be weak and in pain, but people would say, "oh you look so good today." I wouldn't know how to respond. Do I tell them how I really feel or do I just say "Thanks" and let them think I'm doing better?
Also..at least in my experience, its not only harder to deal with the diagnosis when you are young, but its harder to actually get the diagnosis. The doctor looks at you and thinks you're young and just fine. They had me seeing psychiatrists because they didn't think I was really in as much pain as I claimed.