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Had they actually made a diagnosis that fit the symptoms, I would agree.
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That was exactly the point I was trying to make. You have two rare diseases, so quite likely they have never seen someone like you. Your illness did not fit their knowledge and experience, so therefore it did not exist.
Psychiatric problems, on the other hand, can be as bizarre as you like. There are no criteria to make this diagnosis other than that you have troubling symptoms (which obviously you do if you are seeking medical help) and the ignorance of the physician you consult.
http://www.dsm5.org/proposedrevision...ion.aspx?rid=8
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Unfortunately, I no longer see the doctors to whom I needed to prove this
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My personal opinion is that you are very fortunate that you no longer have to see them.