While it is very frustrating to finally "get" a diagnosis of MG, we must remember that only 600 new cases are diagnosed in the US each year - in a country of over 300 million, it's not hard to understand why even the best doctors sometimes miss it.

It's a subtle and slow-acting disease in most cases - by the time we realize there IS a problem, we've probably had the disease for over 10 years; it can take many more years for a doctor to check off all of the boxes of what it ISN'T before they (possibly) think "MG".

Doctors are human, just like the rest of us, and they will usually only see any given patient for 30 minutes to 1 hour each year - it's hard to know what's really going on in a person's life when you aren't living in their body day in and day out.

Thankfully, we have forums like this where we can talk with other people who are going through the same things that we are and who understand what we are talking about!