[QUOTE=4-eyes;907664]I find if I simply say I have a "form of muscular dystrophy" or I'm a "Jerry's kid" it produces a little more sympathy from acquaintances. They think I'm a "future goner" so I get the pity as well as few expectations. LOL People I have deeper relationships with get the whole story.


Thanks, I think that is a great idea to say I have form of muscular dystrophy because everyone has heard of that and knows MD is serious. My experience so far with friends and aquaintances is same as others have said, they assume I just take a pill, feel better and my life is back to normal, especially because to outsiders, we look ok. I know they mean well but just makes me feel worse. I look at pictures from just few years ago and to me I look like I have aged 20 years!