Quote:
Originally Posted by michguy88
Thanks for the responses so far!
-- I have used the peak flow meter several times in a row before. At one point I was so upset about feeling like I couldnt breath, I tested some 10-15 times in a row. Each gave virtually the same result right around 600-650 (which sounds like a good thing  )
I also have an incentive spirometer, and it seems I can 'breath in' just as good regardless how I am feeling...another good thing!
Could it be assumed that these self-tests (along with the constantly normal pulse ox) are good enough to at least let me know if *something* is going on? Is there any real purpose to do more PFTs or more MIP/MEP tests if the docs are unconcered, and my self testing numbers never flucuate?
After a whole round of docs for the last year, I really can't afford to many more exams and what have you! But I also don't want to be foolish and ignore anything.
Thanks again! |
The hallmark of myasthenia is fatigable muscle weakness. This means that when you use the same muscle group again and again, their contraction is going to be less effective.
From the way you describe it, sounds that at least with regards to your respiratory muscles there is no weakness or fatigue.
And yes, this is a very good thing.
It also doesn't sound like anxiety to me either.
Why was the possibility of MG raised? It seems to me that you are looking under the wrong tree.
Nothing of what you describe so far seems to fit MG.
Could it be some allergic reaction?
I think that writing a journal can be very helpful. It may help you and your physicians find what causes those symptoms and more important a possible management which could help.
Many years ago, during my end of year exams, I developed a horrible rash. I went to see a dermatologist who did some tests and prescribed an ointment and also told me to "relax" as this could be caused by the stress of the exams. I was never stressed by exams to that extent, but still took his advice. In order to relax I took warm baths and used the expensive soap I got as a present from my mother in law. But, with all those efforts and the ointment he gave me, there was no improvement in my condition and it only got worse. The dermatologist shrug his shoulders and just told me I should "relax" more. Until one day, while in the bath (just like Archimedes) it was "Eureka". I realized that my rash always got slightly worse after the relaxing bath I took. It took another thought to realize that I was allergic to this excellent soap. Within days of putting it away my condition resolved.
Many everyday household items contain various chemicals which can elicit an allergic reaction. Possibly without realizing it you are intermittently exposed to something which irritates your respiratory tract. It is possibly relatively mild so not seen in the respiratory tests, but enough to cause you significant discomfort.
This is of course just a guess and I may be completely wrong.
I hope you find what causes your problem soon.