Originally Posted by en bloc

It is possible to go undetected in early stages. However, it would be helpful if you had the actual numbers/percentile from the skin biopsy...which I don't think you do. I didn't get the numbers from mine either so would not be able to tell if progression is occurring or not.

Being that everyone is different and the causes/progression rates vary, it would be impossible to guess at how long between testing would be appropriate.