Kimmy,
I had my operation just over two years ago, first noticed a big difference in my condition after about 18 months. Since then I have stopped all medication, I was on mestinon only, and have increased the time between IVIG to 10 weeks. I would love to get off this IVIG totally but according to my neuro there is no way to determine if you need it or not...the only course is to stop it and see what happens...not very scientific...but seems that is the fact.
Chris