Thread: Suspect LEMS
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Old 08-22-2012, 05:16 PM
ejh2 ejh2 is offline
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Join Date: Mar 2012
Location: rochester , new york
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ejh2 ejh2 is offline
Junior Member
 
Join Date: Mar 2012
Location: rochester , new york
Posts: 17
10 yr Member
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Quote:
Originally Posted by Savy View Post
20+ years ago I was treated for auto-immune symptoms by a doctor that is no longer in practice. I am experiencing weakness in my legs. I suspect the problem is Lambert-Eaton Myasthenia Syndrome. I need to connect with a doctor able to diagnose an treat. (A doctor with experience treating MG may also be a good choice.)

I live in central California.

I was diagnosed with lems early 2010.I don't know any neurologists out there but when you do find one ask about DAP (diaminopyradine).I have been told that it's hard to get and experimental , but I get around so much better and I wish you alot of success in your search.
jim
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