Thread: Possible MG?
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Old 08-23-2012, 12:06 PM
~jules~ ~jules~ is offline
Junior Member
 
Join Date: Aug 2012
Location: Ontario, Canada
Posts: 8
10 yr Member
~jules~ ~jules~ is offline
Junior Member
 
Join Date: Aug 2012
Location: Ontario, Canada
Posts: 8
10 yr Member
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Thank you all for responding, I appreciate it!

I woke up feeling very off balance this morning and had to go back to bed for a bit; I am trying again. This is one of the things that make me doubt MG, is me waking up and my vision and breathing are poor making me feel off balance before even getting started.

I am at least going to ask the dr. next week for a referral and take it from there. Even if it isn't MG I will at least have an answer from someone who specializes in it and maybe he will have other ideas.

Anacrusis, I explained to my dr. that my life is very stress free right now and I am actually happy, the only problem I have is that I am too sick to live my life but he is not convinced.

Alice, I do doubt the results of the EMG as the machine shut down twice and he laughed and said he just had to unplug it and plug it back in to reboot. I know that's not good for a computer so I am doubting it is good for an EMG machine. I am hopeful that since this other dr. specializes in MG he may be able to tell me one way or the other with more certainty. If it isn't MG then I can try another route though I do feel I am running out of options. Living in a small city with little specialists is hard.

Celeste, when my dr. blames everything on anxiety I do ask him specifically if it can cause my eyes to droop, feet to go numb etc. and he responded that it could. It's strange I was sitting calmly watching a movie with my son on Sunday, feeling happy, and about one hour into the movie I began feeling floppy but tried to fight it, withing 5 minutes he had to help me to bed. I rested for less than an hour and was able to get up again.

I am concerned that we will make the long trip and that I will get a quick exam and be sent off again with no answers. After trying so many doctors already I am starting to lose faith in them. For myself if there is something I don't know I dig and dig until I solve the problem but it seems with the doctors I have seen, if the answer doesn't jump out at them they shove me out the door and that's it.

I will try and see what happens, it may be months before I can even get an appt. but it will be something to give me hope. I think the worse thing is when I am too weak to get out of bed and I'm thinking to myself that this will never get solved because no one is even trying to solve it.

Thanks again for responding
~jules~
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