Jules,
I would also encourage you to seek out a thorough evaluation, even if it does mean traveling a distance. You may or may not have MG, though whatever you have is greatly impacting the quality of your daily life.

My diagnosis of MG came 7 years after I was evaluated by a neuroophthalmologist for double vision. At the time, I was told that he was 99% sure I had MG. However, my antibody test and EMG was negative so all investigation in that direction was dropped and I was told it was a congenital nerve palsy. I continued to develop other generalized MG symptoms that were also explained away (arm weakness due to statins, documented leg weakness on exam "not physiologic.")

Long story....but I finally was evaluated by another facility (a plane flight away). They gave me a tentative diagnosis of MG when my tensilon test was positive. Treatment has helped, though not to the extent I had hoped.

I am now followed by a wonderful neurologist who assures me that a negative antibody test and a negative EMG does not necessarily equal NO MG. Those 7 years of "limbo" and my treatment from specialists, created a lot of self-doubt, particularly b/c I didn't have anyone advocating for me and sometimes I was just too tired to do it myself.

Don't doubt yourself!!... and continue to seek out answers.

Cate