Abby
I'm so sad to hear you have gotten worse. I had such high hopes for you. As for the steroids my experence has been horrible. My neuromuscular Dr said some people can't take prednisone. This was during the time I lost all strength in my legs. He said I was one of those people. I am down to 20mg and it will likely take another year to taper me off. I started at 60mg. Like you I feel IVIG has no effect nor does Mestinon. Remember I am positive for 4 different antibodies. I don't know what the answers are for us. My wife says we are refractory.
Prayers for you
Mike