Thread: Steroids and MG
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Old 08-26-2012, 06:46 PM
pjlla pjlla is offline
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Join Date: Feb 2011
Posts: 10
10 yr Member
pjlla pjlla is offline
Junior Member
 
Join Date: Feb 2011
Posts: 10
10 yr Member
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Quote:
Originally Posted by MGrelative View Post
Hello, everyone....I'm frustrated because my brother has had MG for years and he has refused steroid treatment. Now, he plans to have his amalgam fillings replaced, thinking that his MG is caused by mercury poisoning. He's lost about 30 pounds (he needed to lose weight) because he has trouble chewing.
My husband and I have been trying for over a year to get him to consider steroid treatment, but he says he's afraid of the side effects, especially diabetes.

Thanks for "listening/reading".

When I first came down with MG, I had a neurologist that didn't have many other MG patients. That Dr that put me on Prednisone. I'll admit, the symptoms went away almost immediately. However, what happened was they slowly came back and the Dr had to up my dose of prednisone for the symptoms to go away. Then after a while, I had to up my dose again. This was a vicious cycle. By the end, I wasy taking 60 mg every other day and at the end, my symptoms were as bad as they ever were. But I also had many other problems associated with high levels of prednisone. I left that neurologist and went to another neurologist who spent 80% of his time on only two types of diseases; MG, and ALS. He weaned me off the steroids and put me on cellcept. I also tried IVIG which helped. I got better and didn't have the side effects from Steroids. But I still had lots of MG symptoms.

Then about 18 months ago I decided to do more research on my own and take my health in my hands. I ate much better, virtually no processed foods, lots of veggies, lots of salads, very few carbs (other then those that come in vegetables or fruit). I take lots of vitamins, Vit A, B,C,D,E, K, multi, pantethine, pantothenic acid, B6, . Also, lots of other supplements like Fish oil, borage oil, flax seed oil, probiotics, DHEA, pregnenolone, Calcium AEP, Beta Carotene, Garlic, selenium, licorice and astralagus (I'm sure I missed a few). I've lost a decent amount of weight, (I too was overweight). I exercise more now (can easily do 3 miles on the treadmill).

Overall, my symptoms of MG are gone. I still take the cellcept, but my next goal is to go to the Dr and work on slowly weaning myself off of that drug. I'm hoping to reduce from my current 2 (500 mg) in the AM and 2 (500 mg) in the PM, to 500 mg (3x per day) then down to twice per day etc etc.

So Although I appreciate you wanting to help your brother I suggest taking prednisone is not a good long term treatment. Great for a stop gap problem. Good luck with your brother.
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