Thread: Steroids and MG
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Old 08-27-2012, 11:14 AM
Southern Bell Southern Bell is offline
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Join Date: Apr 2011
Posts: 103
10 yr Member
Southern Bell Southern Bell is offline
Member
 
Join Date: Apr 2011
Posts: 103
10 yr Member
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I have taken prednisone for about 2 1/2 years because of double vision. It is the only thing that has corrected that problem. I first experienced double vision shortly after my thymetomy in the hospital and was given prednisone and also three IVIG treatments for that problem and the spasms I was experiencing (I have both MG and SPS).

After the treatment in the hospital (sorry I don't recall how long I was given prednisone) I had no problem with vision until about 6 months later around the holidays. It was a stressful time for me and I guess that brought on the double vision again. My neuro tried two rounds of IVIG (over a two months period) with no change and I ended up in the hospital again because I couldn't eat I was so sick at my stomach. They worked me up to 60 mg a day and in about four days my vision corrected. I have been trying to reduce the dosage over the last 7 months (because I've changed neurologist and he is more concerned with my medications than the X-neuro) and am now taking 15 mg every other day. So far no changes in my vision and I'm hoping to be able to reduce it even more and stop having to take it at all.

As far as side effects, I am now diagnosed with osteoporosis which is probably a result of taking prednisone for two years.

As already posted, it works differently on people and I hope you find a solution to your problem. Good luck.

Southern Bell
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