Thread: Spasticity
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Old 04-23-2007, 04:08 AM
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Judy2 Judy2 is offline
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Join Date: Sep 2006
Location: PA
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Judy2 Judy2 is offline
Senior Member
Judy2's Avatar
 
Join Date: Sep 2006
Location: PA
Posts: 1,236
15 yr Member
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Spasticity, what a pain -- literally. Mine started in the legs with that uncontrollable urge to stretch too. At first it felt pretty good, like a 'normal' stretch, but as time passed it became too much of a good thing. Like Chris and Sally said, some is necessary to hold us up, but it's getting to the point now of not being able to bend my knees to stand up. It takes a few minutes of concentrated effort to relax enough, the same with getting in and out of bed. It's amazing how much we take for granted like doing the simplest things. What muscle relaxers have you all tried other than Baclofen? That didn't agree with me.

And would you mind filling me in on the yuck part of the pump!?! I'm not at all familiar with it.

Yes, this living alone as the disease progresses is really a challenge. Starting later today, a physical therapist is coming to my home, don't know what she'll do. Also other home health people now since I've developed this lymph oedema in my feet/ankles/legs. Have to watch it doesn't turn into cellulitis. Never a dull moment!!

The pain factor has been out of control lately too. Weather change probably. Did I mention here that both the RN and Occupational Therapist that came here said if they were in my position, they'd do everything possible to get to a teaching hospital? As I've mentioned before, this is a rural area with no ms specialists around so who knows?? Seems like I've got many things going on at once. Such is life!

Take care!
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.....Judy
SPMS -- FIBROMYALGIA -- Ouch! and Ouch!
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