Thread: cyanosis
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Old 04-23-2007, 07:09 AM
Cake Cake is offline
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Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
Cake Cake is offline
Member
 
Join Date: Sep 2006
Location: Australia
Posts: 148
15 yr Member
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I just wanted to add one thing to this, regarding Vic's post.

I had ten months of lower pain levels thanks to a ketamine infusion. A lot of the time I was totally pain free, the worst I got was probably a 4/10, but that was often provoked- such as the time I burnt my rsd hand in the oven! ) It only came to an end when I got bitten by a spider on my leg and caused nerve damage (resulting in rsd spread) and that started my arm up again.

And I've had over two years of no allodynia pain. Before my first infusion my kids couldn't touch my hand at all- for three years it was out of bounds. Within a few days of the infusion started my husband could hold my hand for MINUTES, and I could bang my hand and it wouldn't hurt. It's only in the past few months this has come back, and that was from my infusion in 2004!

So there are some good stories out there, but unfortunately the majority are not as lucky as me.

x Kate
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RSD in right arm for 13 years, right leg for 8 years, left arm since May 2013, with full body symptoms and CNS.
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