Parbie I believe was the person to recommend I make an appointment with Dr. Schneider (since I can't see denver doctors anytime soon) and I took their advice and made an appointment. I am very worried with what I'm going to did out. I have only vascular symptoms and have been convinced I have ToS. I recently spoke to my cousin was is a patient of an amazing doctor in NYC named Dr. Sen who saved his life. Has anyone heard of him? My cousin had a very similar thing as TOS but it was worse apparently. In his spine an artery was being compressed and when he turned his head to the left he would almost pass out.

Im freaking out now bc all this time I think I have ToS but maybe I have what he had. He almost died from surgery and scar tissue and Dr. sen did another surgery and saved his life and fixed his very rare problem. I researched dr. Sen on Internet and don't see anything about TOs but my cousin says that is what they thought he had.

Anyway... I'm starting to wonder if I have something worse than TOS or this dr. Schneider won't be able to truly find out what's wrong with me. Has anyone gone to speak to him or have surgery from him? What did you learn from him? How is his bed side manner? I realize he isn't as experienced as dr. Brantlgan but when I called the office the secretary said he deals with TOS all the time. I was thinking of getting the diagnosis from Dr. Schneider and hopefully taking test results to Denver for surgery. I am so worried about getting a stroke or blood clot but I am also worried about being worse off after surgery with scar tissue.

Can anyone message me privately who has been dished with arterial or venous toS? I need to speak to someone who knows how I feel. My thoughts about having something sitting on a vein is overwhelming and is effecting my quality of life bc of how scared I am. Is this normal to feel this way? Did you feel this way when you were diagnosed?