I hear you. Ever since I started getting so sick and having this excruciating burning all over my body - very "bad" thoughts have crossed my mind.

I wonder if I'm going to become a burden on my husband very prematurely. He's only 26 - I'm 28. I don't want to become an embarassment to him. I have trouble even feeling like a "woman", which is another heartache.

There were times when I read things about PN progression when I seriously thought I should throw in the towel in advance. Not knowing how fast this will go, or what the pain will be like......it's maddening at times.

But like other people have said - who knows? Tomorrow this COULD just get better, or maybe the docs will figure something out....or maybe a new treatment will come up some years from now. So, I've decided to stay in the fight as long as I can, change some of my own bad habits. I don't know why this is happening to me - sometimes I think I must have upset Karma or something - but it doesn't matter...I have to struggle on.

I don't know how bad it is for you, I'm sure even I would have my limit. But I think I want to go on as long as I can, with hope for a bit of relief/hope somewhere soon.

Liz