Member
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Join Date: Aug 2006
Posts: 121
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Member
Join Date: Aug 2006
Posts: 121
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After reading Terri's post I had to add mine. Husband Kevin was diagnosed in 2000 but only after 3 years of trying to find out what was wrong. He asked his Internist specifically if he thought it was PD and was told "no, it's only Essential Tremor - you're too young. This MDS was convinced that I was watching too much TV - this being shortly after MJF went public. Finally after I called the office screaming and refusing to get off the phone without a referral to a nuerologist we were finally given the refferal. The neurologist diagnosed it immediately.
Because Kevin was so phyically active, his sytoms were masked for a long time. By the time he was diagnosed, his arms were not swinging, his face masked and we had experienced falls & choking. I am amzed at how hard it is to get a diagnosis.
Gayle
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