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Old 08-28-2012, 10:12 PM
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Abbie Abbie is offline
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Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
Abbie Abbie is offline
Elder
Abbie's Avatar
 
Join Date: Oct 2006
Location: In a DARK corner.... not looking for a way out.
Posts: 5,526
15 yr Member
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Hi Jeannie,
First lest me say how sorry I am to hear that your friends & family don't
understand. I've been there, done that and to some extent still do.

I have heard that RSD can go into remission but unfortunately I have never heard of RSD completely going away. I'm not saying that it is impossible, just that I've never heard of it.

I have been battling this MONSTER going on 9yrs.....mine has spread from toe to head, including internal organ involvment. I've been on forearm crutches for the past 4yrs and I have a wheelchair for longer trips just in case.<-----I refuse to use the chair, unless I absolutely have to!!!!!!

Please understand that no two of us with RSD have the same symptoms and no two of us respond the same to the same medicines and/or treatments.

I hope find something that helps you soon.
Here is a site that might help your family understand.
www.rsdsa.org

I wish you the best,
Abbie
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niece Ashley!

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Rest in Peace
3/8/90 ~~ 4/2/12
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