My wife is my doctor. She goes to all my Dr visits and keeps them straight. My GP prescribed some antibiotics for me and she told him not no but he** no. He argued with her and she told him to look it up. She was right. I was in the hospital and the nurse tried to give me 3 60mg for my 180mg time release mestinon. Again my wife said he is not taking that. They didn't have the 180 so my wife went home and got mine.
We have learned that all these high paid doctors don't really know that much about this disease. I do see a neuromuscular dr who was on the team that actually discovered the antibodies. He is very smart and his exams are the most through I have had. But his bed side manner is the worst I have ever seen. I don't mind seeing him now that I know what to expect. He was the one that discovered Prednisone was destroying the muscles in my legs.
This is a long hard journey but we will whip this thing
Mike