Tom,
It has taken mine 3 years to start spreading. Now it is in both feet. But the original foot (right) is far worse then left. I believe I also have some internal stuff going on, but not sure if it is medication related or rsd.
I am sorry to hear about your spread so fast, some are slow some are fast. I can argue against or for your dr.'s there in the UK, all I can say is that I have heard of people going to Mexico for Ketamine coma.
Quote:
Originally Posted by Yosh89
Hi all,
My name's Tom and I'm 23 years old and from the UK. I got diagnosed with CRPS II in April 2012. Since April it's spread from my left toe, to left foot, right toe (strange right) right foot, up both my legs and into my right hand and arm. I can't come to terms with such a rapid debilitating turn, though I'm trying blocks and have been enrolled into Dr Andeas Goebel's immuglobilin treatment in February 2013. He's an expert in CRPS so let's just say I have high hopes!
To those of you fellow rsd'ers that have had a spread, how quickly did it take to get to where you are now? Do you still have hope for new or future treatment? I know cancer is a terrible disease, but I wish there was more funding for crps as it's not fatal but just as painful. We have no way out!
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