Good morning my young friend,
My name is Andrea and i am in the 21st year of RSD. I live in Daytona Fl. There was no time frame for me as far as the RSD spreading. It was almost 5 years before I knew it took my left arm after a right ankle injury in 1991.
I was stirring pasta, I'll never forget it. As I turned the spoon I felt a burn and stab in that hand, kinda like a bullet just hit me. I put down the spoon and fell to my knees begging God to let me be wrong. Time and pain went on and in 1997 I was deemed System by Dr. Hoosmand of Vero Beach.
My Thermogram showed no legs or arms it had gone that far with the hypothermia effects.
I know there are allot of new treatments out there, so keep the faith and hang on for your miracle. PLEASE keep me posted as to how this treatment works for you. Will keep you in my prayers.
As for hope with the medical system and RSD...I prefer alternative care. I have been pocked, cut, stabbed, pricked TOO many times with no permanant results of releif. The more invasive the worse the result for me.
One thing no one will ever do again is a nerve conduction test on me. That is an inhumain test and especially on an RSD body. I would rather get struck by lightening.
Beings my injury was a work related issue I had to endure every torture test the the medical profession had to offer. The last was 3 days at Wake Forest Medical with 10 hours each day filled with tests that proved only that I did not have MS, MD, Palsey,P.A.D issues Yadyada....never, oh yes it is RSD.
So dear friend, keep the faith, but do hold sight of reality. Your mental state has allot to do with this monster too. It will mess with you but you can stay ahead of it if you are on guard for it coming at you like a tornado.
Be good to YOu, and find happy people that keep you up and laughing.
Those laughter endorphins are magic when you use them.
As for RSD not being as important as cancer, or a lost limb, etc...
The discrimination can really make you nuts if you let it. You have to make yourself NO. 1 and hold tight to the truth you live with. God knows how we suffer and it will be by His grace that we are healed. Keep the Faith.
God bless you and keepyou strong. Peace& LUV, Andrea
Quote:
Originally Posted by Yosh89
Hi all,
My name's Tom and I'm 23 years old and from the UK. I got diagnosed with CRPS II in April 2012. Since April it's spread from my left toe, to left foot, right toe (strange right) right foot, up both my legs and into my right hand and arm. I can't come to terms with such a rapid debilitating turn, though I'm trying blocks and have been enrolled into Dr Andeas Goebel's immuglobilin treatment in February 2013. He's an expert in CRPS so let's just say I have high hopes!
To those of you fellow rsd'ers that have had a spread, how quickly did it take to get to where you are now? Do you still have hope for new or future treatment? I know cancer is a terrible disease, but I wish there was more funding for crps as it's not fatal but just as painful. We have no way out!
|