Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Hey, they tell me that it's really important to be very, very well hydrated before, during, and after IVIg.
Of course this is inconvenient because it means you have to go to the bathroom a lot. That was especially tricky for me, because I needed a walker but couldn't manage the walker and the IV pole at the same time. Here's a handy tip: if you ask the nurse to help you, that's less trouble for her in the long run than if she has to pick you up off the floor when you try to go yourself so you won't bother her! Just passing on that little piece of knowledge, which I read in a book. OK, not.
Re: Mestinon: it wears off fast. If you find it works well, but you get weak again before your next dose, ask the doctor if you can take it more often (instead of taking a higher dose).
Abby
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