Quote:
Originally Posted by bny806
Thanks so much yall, for your replies!! Photobug: After the first loading dose (3 days in my case), i got pretty bad aseptic meningitis (confirmed by LP, I had been admitted into the hospital before it all).. Anyhow, after that loading dose, I thought I might feel better, but then just chalked it up to it must be placebo effect.. as I didn't want to get my hopes up.. that's how my symptoms remained for the next 3.5 weeks, then I got my second round of IVIG and felt crumby, and then on the 4th morning woke up - grabbed my phone, and couldn't believe it!!! I could grab my phone without jelly fingers.. each thing I did - get out of bed and walk, grab toilet paper, get up from sitting pick up my kids, holding silverware etc.. was all like a new amazing experience.. I then realized just how bad off I had been for so long..
So, sometimes it takes a few rounds before you get the full effect.. Wishing you the best of luck!
THank you all for your replies!! I Hope yall are doing well! I'm not around here often anymore, as I am thankfully back at work, taking care of my little ones etc.. I get IVIG every two weeks, and it holds me pretty steady.. though not where I would want to be, it's acceptable for sure.. we probably need to add an immunosuppresant, but I"m worried about it with my job, plus two little germy toddlers!  |
Thank you nby806, my Neuro has never even suggested more than one IVIg. I will email him and ask him if he expects to schedule me for more if the first one doesn't "take." Doesn't seem that it did, but with the new meds its hard to tell what's going on...he says that the Prednisone may even worsen some symptoms before they get better, so I wonder if that is masking any improvement the IVIg may have produced. Yeah, I'm confused...that's for sure.