Senior Member
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Join Date: Feb 2010
Posts: 1,215
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Senior Member
Join Date: Feb 2010
Posts: 1,215
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Mike, I'm a fan of your approach: let's try everything. What strikes me is that everything you've tried, you've given a really substantial trial to...all that IVIg, and all those months on Imuran even though it was making you sick...
I don't take Mestinon either. Every once in a while I thought it was helping, but mostly not, and if I take it every day, I get a chronic pain in the muscles around my eyes.
I think the most hopeful treatment for MG is persistence. Hang in there. I wish they'd try you on plasmapheresis next, only because I've read that it helps some people who don't respond to IVIg.
Abby
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