Erika, I want that LDN, to give a try. My hematologist just laughed (semi-sneer) when I inquired about it, but it seems to have helped many. At this time I am acutely depressed and need some help. I can't take anti-depressants because of Porphyria. I did tolerate very very well the radiation given to blast my platelets into a reasonable number, although who knows the long term effects, so far none. Maybe I could tolerate LDN, but I don't know how to get it as my main doc ridiculed it. That is, the hemo. Maybe I will try pcp but I don't think she will have even heard of it.
I believe, Erika, that I am hereditarily inclined to porphyria and that porphyria sometimes causes the brain scars of MS (not always, sometimes). Or else I am hereditarily inclined to both diseases. (the Polycythemia Vera, my third dx, does not seem to be hereditary). I am really tired of dealing with this and wish I could take a pill to help. I very rarely take demerol, chronic pain is not bad except neuropathy in feet, so I probably could take LDN from that perspective. Way off topic. Sorry.