Member
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Join Date: Dec 2006
Posts: 724
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Member
Join Date: Dec 2006
Posts: 724
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You must follow the advice about waiting to tell the boss about definite dx, unless you and boss are on such good terms that you confide intimate things.
The person who said we have different paths in MS is right. I am still walking, decades after my first symptoms, but I do walk with neuropathy pain because of a late dx and improper drug treatments, and of course, just because I got older. I am in a wheelchair only to help me reach low shelves in my house; it is my husband's wheelchair, who died three years ago--it is a great way to reach low shelves if you are too stiff or unbalanced to squat.
I am not sure if MS is the only disease that causes brain scars. As most know who know me here, I did have many brain scars at diagnosis, and they moved around. Then I was dx'd later with Porphyria. Sometimes Porph causes brain scars (rare to cause them) but I have a theory that Porph sometimes is a disease in which a chemical can cross the brain barrier and cause MS. This is my theory and I am not trying to get anyone to agree with it--it's just a result of my own peculiar (very peculiar) life path. For a while I thought I had only Porph and maybe not MS, but now I am convinced I have both, and that is why I find this forum so helpful. Thank God for you Neurotalk people.
The advice to get insurance now is absolutely right. I got long term disability through work when I realized I MIGHT not be able to work to retirement, and it did kick in immediately when I had to go on disability suddenly, and still pays me a small stipend every month even though I am now on Medicare and retired.
Bless your journey.
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