Wow painman, you could be telling my story except I'm a girl.i feel like I have completely lost who I am due to this monster of a disease. I can't be fit, I can't do things I used to do.my bones are like glass. One false turn and they break. I have an scs that we are still tweaking which helps somewhat, but I just want to go outside and scream sometimes at the top of my lungs. The I start why me and asking what I did to deserve it? Who did I **** off? Anyway, I wish I could help and give you some magic potion to make you feel better, but I just wanted you to know you weren't alone and even though it might sound bad, I felt a kindredness with what you were saying cause I felt it all too!!maybe we coud chat or email or whatever. Anyway, I don't have any sage advice, but I completely and totally understand!!

TK