Hello. I have had RSD for about 9 years now...and after diagnosis I have tried every medication and hospital treatment available to me with little or no result. It's been difficult not knowing anyone else going through this and dealing with all of the losses that come with this disease alone.
Sometimes I feel like I can't handle living like this for the rest of my life...it keeps getting worse and doctors keep giving up on me...now I am on nothing for pain...and the level of it makes me feel ill and weak most of the time. Just talking about what I have been though would help me but it's been 9 years of struggling to find that. I am young but maybe my medical experiences would be of use to someone who is wondering about treatments.

Right now the biggest struggles for me are coping with the pain...the loss of enjoyment in life and being denied real friendships...I really have no one left to talk to about this and in 9 years I have never really spoken to anyone else with RSD. I can't talk to people my own age because they don't understand me and my walking and memory problems scare them away. Is anyone listening?