Originally Posted by tkayewade

I, too, was a very rapid spreade. Mine went right foot, leg, hip, left foot and knee, and right hand to elbow (due to a botched IV). I now have an scs(spinal cord stimulator) implanted to pretty much keep the rsd in my legs in check and I take meds topomax and dilaudid to keep arm pain as well as it can be. Course, it's hard to type and write, but I'll take somewhat pain control over non e any day!

It is a very tough disease and I have been working with a counselor as I was a marathoner and triathlete before diagnosis. Soooooo, there has been a period of adjustment and acceptance for me. I was extremely lucky to be diagnosed early and treated aggressively by an awesome pain doc who specializes in rsd and believes how horrible it is!!

Anyway, hope things go well and get better for you!!

TK