Hello & welcome,
I'm glad you had the full name of the CPM on your profile, I couldn't find it by googling.

I'll add central pontine myelinoysis to the thread title so more replies, or others seeking information about it will find the post.


Often we get posts saying Drs think there should be no pain, but if you have pain , trust yourself and keep searching for some sort of care provider that will believe you and try to help. It may take a care provider that is more alternative based if a MD or DO cannot be helpful.