Hi Newjill.

I can't really give you too much insight into what to expect (I was just diagnosed on 8/29), but so far I've found some great information from the people in this forum.

My official diagnosis wasn't all that difficult to deal with. I had been dealing with symptoms for approximately 3 weeks before making an appointment with a neurologist and had to wait another 5 weeks before the appointment arrived, so I had time to research my symptoms and had a pretty good idea of what was coming. That's not to say it hasn't affected me or been upsetting to me, because it most definitely has. In fact, it's been an exhausting 2 months, mentally, physically and emotionally, but all I can do is look forward to the future and figure out how to live my life with this new challenge.

It sounds like your experience was a lot more traumatic than mine, considering you were in the hospital and having breathing issues. Thankfully, I haven't had to deal with that, but I can't imagine it being easy at all.

I hope you're able to find the right combination of meds and treatments that work for you and your situation. Best of luck and I hope you find the answers and support you need here!

Adam