I so agree. I have been "moving the hole" for many decades now, before and after diagnoses. At this point I am approaching the point where I can't move the hole any more, emotionally. I've been trying to manage things too long. At this point I appreciate why some people say they don't want to keep "coping," just want a pill to fix what can be fixed.
I wish I could try LDN but it would take a very knowledgable doctor to tell me if I can take LDN when I have Porphyria. I do not currently know any doctor who understands porphyria. They may understand a little, and I can fill them in on many areas, but I have no knowledge about the Porph/LDN configuration and I don't think they would either. I really need help right now and there isn't any.