First off, Welcome, i have found so many helpful people through this site, and a lot of info, and i hope you will too!

As for being only 22, I can relate, i am 21, i didnt have it at a young age, but my life was just getting started when this took over. I have learned to find things i can do, and to focus on those more than the things i cant do.. which is not always easy. I am sorry to hear you dont have anyone to talk to, but im here if you need someone. The few friends that i still have dont realize what i go through everyday, and dont understand why i cant go out whenever i want, or didnt make it to church, or what ever it may be. I have just accepted that they wont understand.

I am currently searching for a doctor who wont give up on me too, and i have only been dealing with this for a short while compared to you, but i have faith i will find a doctor who will be able to help me.

I also am a writer(i have to type it left handed due to my rsd, ive yet to accomplish writing left handed..) , and i read a lot.

I hope you get some relief of some kind soon, and have a peaceful night of sleep. I know sleep can be hard too.

If you need someone to talk im here, pm me.