No, I don't mind you asking. But, it's a rather long answer...

Sept. 2009 was not the early days of my MG.

My first hospitalization (with the diagnosis of "MG crisis") was in 2005. ( I had "possible" MG symptoms for a few months prior to that).
After my recovery, I was able (with significant difficulties) to resume full time work for about 2 years.

In early 2007, I stopped doing night calls. A few months later I moved to working half time and started requiring intermittent respiratory support due to recurrent episodes of respiratory failure (according to my pulmonologists).

In the summer of 2008 (after a month hospitalization and treatment which was supposed to lead to my recovery in a large MG center), I became nearly bed-ridden, required respiratory support most of the day, and had to become my own physician (As although technically I was in "crisis", according to the neurologist who took care of me at that time I was in fact in remission and had severe disabling symptoms, severe breathing difficulties and a high QMG score due to "not putting enough efforts" and " emotional problems", I was apparently not aware of. I was sent home to figure it on my own and my GP was told that I should receive emotional support and all involved should be positive. No doubt that he was).

For 10 (very " positive") months I put significant efforts into reading the medical literature and learning everything I possibly could about this illness (not an easy task when you need assistance in almost every thing you do, require respiratory support most of the day and it takes you a few days to read one short paper). But, I gradually figured out the cause of my "unexplained symptoms" and found a better management approach which gave me a few productive hours each day. I then managed to return to work very part time and with a lot of accommodations.

My occupational physician was quite reluctant to let me work at first, but I convinced him that I am in a somewhat better physical condition than Stephen Hawking. And if he can work, why can't I?
After talking with the head of my dept. who said he will be glad to have me back at any capacity, he agreed to give it a try. Initially I did not do any clinical work, but my patients (who were taken care by others) came to ask for my advise and gradually returned to my care. I (and my colleagues) realized that despite my physical disabilities I am still fully capable of making diagnostic and management decisions, even if I need their help in physically doing them. ( I am very fortunate to work with a great team of people who are ready to do that).

Since then I am having a very slow recovery, with a lot of ups and downs. But, have not yet even returned to how I was before this hospitalization in 2008.

For all practical reasons I have 100% disability.
But, I say that I have a severe disabling illness, but I am not letting it disable me. I keep on with my clinical and academic work at my own capacity.

I believe (although I can obviously not know for sure) that had my illness been managed properly from the early days in which I had very mild bothersome, but not disabling symptoms, my condition now would have been very different.

This is why I am putting a lot of efforts into doing what I can to change the way this illness is diagnosed and managed, mostly in less typical and not by-the-book cases. I also encourage patients not to accept unreasonable answers. They may or may not have MG, but they deserve to be treated with respect and given honest answers (An honest "I don't know" is better than false reassurance in my opinion). I think there are many misconceptions and lack of true understanding of this illness in the medical community, combined with way too much overconfidence. This has led to serious and very dangerous errors in my case and I believe also in many others.