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Old 09-04-2012, 03:55 AM
robocar robocar is offline
Junior Member
 
Join Date: Aug 2010
Location: pittsburgh, PA usa
Posts: 37
10 yr Member
robocar robocar is offline
Junior Member
 
Join Date: Aug 2010
Location: pittsburgh, PA usa
Posts: 37
10 yr Member
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When was the last time you saw your neuro? If this is a new development I would definitely pass it by him and be evaluated to see if your current treatment plan is effective - MG is a continually changing disease and what worked 6 weeks ago may need a tweak now and then. I'm assuming since you're on IVIG every 2 weeks you are being seen more often. To make treatment plans effective there has to be close communication with your doctor and both of you need to work together - it's much easier now to do that in this age of electronic hospital records and email communication with your healthcare team. Have you spoken to your infusion nurses about this - many times they will mediate for you to the prescribing MD if they notice something "is not right."
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