Quote:
Originally Posted by Meggie
Hi Jeanneuro,
My name is Meggie and your post caught my eye. I am not a neurologist by any means but have a very basic medical background I am more than happy to share what I know. 
Many of your symptoms coincide with parasthesia type symptoms which are many times caused by peripheral neuropathy (or nerve dysfunction) or neurological disease among others. Your worsening symptoms (especially headache) with strain can indicate many things, one being Chiari 1 malformation and/or syringomyelia (the latter is my diagnosis).
Chiari 1 malformation is where the cerebellar tonsils descend at-least, but not limited to 5mm below the foramen magnum (basically part of your brain is getting squished out of the bottom of your skull causing a block in proper fluid movement). There is also a Chiari 0 diagnosis now but I have yet to find the parameters other than a 4 mm or less descent.
Syringomyelia is a rare spinal cord disorder most commonly caused by Chiari 1 malformation where a cavitation of the spinal cord is formed by an interruption in CSF flow forcing it into the spinal cord creating a "syrinx" (similar to a cyst and shown well in my profile picture as a large white oval inside my spinal cord). I highly recommend informational searches from the National Institutes of Health (NIH) and The Mayo Clinic (Wikipedia is not a reliably accurate source) for further reading.
I know first hand how debilitating these types of symptoms can be and understand how rare and misunderstood these disorders still are. I would highly recommend a consult with a different neurologist if not a neurosurgeon.
I hope some of this information might help and hope for you the best. Meggie |
Thank you for your help. I did a cat scan and an head mri, both of them came normal. The doctor said nothing is wrong. Will what you described show up in the mri? Right now the symptom borders me more in my left. I think it is the left nerve, especially my left leg. I went 2 weeks ago and did a emg test to my left side and I haven't been to my next appointment to get the report. My doctor told me it maybe something in my lower back. I am still waiting to get an mri of my lower back. Sometime I feel some lower back pain to the left side and sometime I feel something is moving in my left leg. I am waiting for the MRI to get an appointment at Barrow clinic in scotsdale. I am also thinking about going to get at diagnostic at Johns Hopkins if nothing work. I think is my left nerve. The pain is more sever in the left side including foot, leg, thigh, shoulder, hand, nerve pulsing on my left forehead, lower back pain to the left.