Quote:
Originally Posted by bny806
thanks so much!!! I appreciate your reply and the link - I don't feel so alone in that now!  Another wierd question - do you ever feel like your lips are puffed out?? ................ I think I don't have the muscle strength in my face to hold my lips in??!?! Ever heard of this??
Have you been diagnosed with MG officially?
THanks again, and best to you too! |
Are you still able to whistle? I´ve heard that some have problems with that. I have to admit weakness in my facial area was limited to masseters and suprahyoid muscles under the chin. Tongue felt WAY too big for my mouth and when I would read bedtime stories to my child I was fine at the beginning of the book but sounded like a drunk by the end of it. At my worst I was falling over into my dinner plate in front of guests as my trunk muscles could no longer hold me up towards the end of a meal. So there you are bny806…. plenty of us with strange symptoms - you are not alone!!
I have 2 suspected seronegative MG diagnoses from 12 months ago. And due to a ´comedy ´of errors, with one unfolding after another, I ended up having to wait a whole year to get my upcoming SFEMG. In the meanwhile Mestinon, ice, rest of specific muscles all help. Whereas antibiotics, heat, repetitive use of specific muscles, provoke myasthenic weakness during a flare up.
Wishing you renewed strength asap
Anacrusis