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The reason I was put on the vent was because I was retaining CO2
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What were your symptoms? were you able to talk? were you able to swallow your own saliva? were you fully conscious?
You mention that you went to the ER-what made you go if those symptoms were going on for a few weeks? Were they worse? Did you walk there on your own or were you brought by an ambulance?
I am asking all those questions, because I am trying to get a better understanding of the symptoms you had which led to intubation to see if there are ways to predict them so that this will not happen again.
MG is different for different people and if you can learn your own pattern you can gain more control.
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My problem now is I can't sleep. I can't lay down in bed because I feel I can't breath. If I prop up in the chair I sleep for about 4 hrs and then I am awake.
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It sounds like you still have respiratory muscle weakness. Your breathing muscles have to work harder when you lay down, that is why you are more comfortable propped up.
It is understandable that with such symptoms, seeing your neurologist in a few weeks you are as concerned as you are.
Also, do you have a respiratory physician following you?
You do not mention other symptoms, but I would assume that you are probably still quite limited in your daily activities. Are your breathing difficulties only at night, or do you also experience them during the day? How much for instance are you able to walk before you start experiencing difficulty breathing?
I think you need to let your GP know how you are doing and have him refer you, if required.