It has been horrific. I know that others have suffered longer. I am concerned for his health.. He is 19 almost 20. We are in the US. The laws are awful here for this situation. There is nothing that families can do to help. I tell every doctor he encounters, however, they don't seem to communicate with each other. I end up having to re-tell the story and symptoms over and over. This is fine... I'm his mom. I am so afraid I will forget details. I have things written down and the binder is growing.
Thank you so much for asking and offering advise.
beth