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Old 09-08-2012, 04:45 AM
carbreezy carbreezy is offline
Junior Member
 
Join Date: Jul 2012
Location: Michigan
Posts: 47
10 yr Member
carbreezy carbreezy is offline
Junior Member
 
Join Date: Jul 2012
Location: Michigan
Posts: 47
10 yr Member
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..Thanks you guys.

Yes all my levels in CSF were in "Normal range"
( i thought they were perfect} Doc just said they looked Really Good.!!

What started this Whole Journey was i was having this Slight...and i mean slight on and off weird feeling in my left side of my Jaw area ...like a slight Numbness...some days i would notice it and some i did not. When i told my general doc she said "You Gotta go see a Neuro doc for that.!! .. I was like "ok" ...Cool.. I thought maybe i will get an MRI out of the deal..Cause i have Always wanted to see My Brain..!!

at this Neuro doc - I thought i would Lay it all on the line (since i was there)
So i told him How i would get on and off periods of "extreme fatigue" and weakness and Pain....(not all at the same time) !! ..I told him i thought it was from my thyroid or Hashimoto's or Hormones...etc.
He said maybe...but he wanted me to get an MRI to rule out MS.
I freaked out...I Never thought i fit into MS symptoms...! But I played along...I was still excited to get the MRI and See MY brain.!!

MRI comes back...says i have Chronic deep white matter ischemic disease ..and also two highlighted areas seen....!
I go for my follow up and this doc says...you gotta get a spinal tap.
I freaked Out.!! No way - this doc says i have a demylinating disease. I asked if it could be "MS" and he shook his head yes. But he said "thats why you need to get the spinal tap....to help rule it Out.!

i Finally agreed to the spinal...took the results and All my reports to a Different Doc. (different hospital) this New doc is Medical director - Head of Neurology at the MS clinic. He did a very intense testing...( head to toe) etc.
(actually there were 5 lesions not two - like the report stated )
am here i am.... he says Nothing points to MS...( well he talked to me to explain everything - he went over a lot with me...) Very kind.


hope this helps...to understand..
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"Thanks for this!" says:
ANNagain (09-08-2012), dmplaura (09-08-2012), Erika (09-08-2012), Natalie8 (09-08-2012), NurseNancy (09-08-2012), SallyC (09-08-2012)