Thank yall!!! They did do a CT on me a couple of months ago - it was normal... I had forgotten about the LEMS little question in my mind until recently.. I have been getting IVIG every two weeks and doing pretty well, though at times my symptoms fluctuate quite a bit!!
I do have the dry mouth and autonomic symptoms that could go with LEMS... but the bloodwork was normal (though i recently read only 40% of people with LEMS have the antibodies- who knows if thats correct)!

Anyhow.. those of you with LEMS - did yall have muscle pain?? the past few weeks I am getting more muscle pain - mostly low back, butt, thighs.. my CK is normal (as far as myopathies etc goes).. and I just wonder why do my muscles hurt so badly at times!! Even when I sit on my bum for too long or against my back (like when I sit for IVIG) my muscles KILL - this intense ache!! I came across this associated with LEMS sometimes - I was curious what yalls experience was!? thanks!