I think that we are all put in a holding pattern by the doctors. Most of them have never seen MG and they have no idea what to do with it. I would try to get the neurologist appointment moved forward.

Meanwhile, just don't push yourself to do excess physical stuff. Rest is your friend. Rest is the best medicine out there for MG. (Not to say the drugs don't help; they do.)

I am still faced with guilt trips when I don't get the house clean, when I don't participate in various activities, etc. But I just can't do everything that I once did. So I don't.

How do you wait? You just do. If you get severe, go to the emergency room, but it is probably a waste of time unless you can't breathe or something. On a good note, at least for me, this is not something that gets you a little off today and slams you down tomorrow. Things move along slowly. If you have MG, you will probably not be any worse tomorrow than you are today. Don't let fear or stress make you worse.

This group has really helped me. Hang around.