they arent treating anything! and I continue to feel like garbage everyday...

they have me trying the high sodium/fluid diet currently for POTS but it isnt doing anything, havent felt any better nor seen any improvement in the bp/hr numbers...

I actually read that if you have any issues with your aldosterone/renin hormones than the high salt/fluid wont do anything... sd like to have those looked at but the POTS neuro said to give the treatment a few more weeks

GI, gain not doing anything because they dont have anything to go on... I am taking probiotics but thats it. I have some nausea pills if it gets bad, but nothing for the general ill feeling, bloating, etc.

B12 has been pretty good high 400's to low 600's I think, D has been low, around 23...

I am really contemplating going to Mayo (even though Boston is suppose o have some great hospitals) with the workup I have already had and all my files, I'd think Mayo might be able to review everything and figure things out. Only problem is they dont take my insurance so it would prob be like $20k out of pocket...

So lost, not sure what to do... mayo? is there some place better?