yes, you are right about mayo clinic. They are a huge group of specialists, who converge on you. Lots of testing gets done very quickly. I received my diagnosis within three days. JohnHopkins also has a good reputation, but I think for DX on complicated cases, mayo is the place to go. I would recommend this place for anyone who has trouble getting to the bottom of the problem. You may not like what they have to say, but they do find out! ginnie